Saturday, March 7, 2009

Kiera's edema is getting worse

I think that I might have figured this out, but we will see.

After we started to take Kiera off the Topamax this is when we really started to see the edema issue, she always had slight swelling in her legs if she was in her chair for to long and especially if she had her afo's on.
But this is different, we can not even get the afo's on now, haven't for about 2 weeks now.
Some of the side effects of Topamax is weight loss, acne and some other more common side effects from seizure drugs.
The Lyrica side effects are weight gain, hair thinning, edema, and a burning feet sensation, kidney stuff and again among other side effects.

Well this is what I am thinking, Kiera was put on the Topamax before she was laced on the Lyrica, so she did loose weight at first and she started to get acne.
Then the Lyrica comes on board.
We did not see any real side effects besides thinning hair, and a bit of swelling, but nothing to be worried about.

Now we are coming off the Topamax and I think what we are seeing is the side effects of Lyrica that might have been masked from already being on the Topamax.

The other day she just kept rubbing her feet together and they were a bit pink, the swelling does not go away at all even after having her legs up. We are seeing hair on her shirt, maybe 10-15 strands. I pick one off and find another.

I think we should look at stopping the Topamax wean and starting the lyrica wean right away.

We are going to see a Adult Doctor next Thursday, he will get to the bottom of this, he always does.

Oh how I hate medication and what it does to Kiera.
I feel sick that we are causing this to her and she just has to deal with it.
Enough already!

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