Kiera's Road with CDKL-5
I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading!
Wednesday, February 15, 2012
Well it looks like its almost been a whole year since I have posted.... but I can happily say that there is not much to report except that she has been very healthy, happy and content!
She however can not seem to heal a bad area right below her bellybutton, we think it started from the medal from the safety belt on he wheelchair. I think that her skin was touching it for a prolonged time while at a Doctors appointment and became very irritated. That turned into an open soar. It's been about 4 months and we can not get it to go away....probably have to add medal to her growing list of allergies......life goes on!